NIH Tightens Data Sharing Rules, Eyes Global Cooperation
The U.S. National Institutes of Health (NIH) has been working to improve genomic data sharing since implementing its policy in 2014. However, data remains siloed, hindering research progress. Now, NIH plans to strengthen its approach by considering past compliance with data sharing policies in grant decisions and expanding international cooperation.
NIH's Genomic Data Sharing Policy, introduced in 2014, requires applicants to submit data sharing plans and deposit data upon publication or acceptance. Despite this, data is still collected and stored in decentralized silos, making it difficult for researchers to access and replicate studies.
To address this, NIH plans to instruct reviewers to consider past compliance with data sharing policies of applicants' affiliated institutions. This could encourage institutions to prioritize data sharing and foster a culture of openness in research.
Internationally, NIH has partnered with countries like the UK, Canada, Australia, and Germany to improve genetic data sharing laws. To further advance this, NIH should invite cooperation from countries with advanced genomic research, such as Japan, South Korea, and Brazil. Additionally, NIH should work with partners to establish international data sharing standards, such as encouraging Genome Canada's liberal sharing policy and addressing EU's GDPR restrictions.
NIH's move to consider past data sharing compliance in grant decisions and expand international cooperation signals a commitment to breaking down data silos and promoting open research. By working together, countries can establish common standards and accelerate genomic research worldwide.
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